A DIARY PLATFORM FOR NEUROLOGICAL DISORDERS

OUR VISON

Is better quality of life for people living with a neurological disorder,
and to facilitate the search for cures.

Who is it for

One platform, multiple user groups

We strongly believe in collaboration and partnerships where patients, physicians, researchers, the pharma and medical device industry work together with the aim to improve the lives of patients living with a neurological disorder.

OUR MISSION

Provide a platform for electronic patient diaries to improve the quality of life of users, and to facilitate patient-physician communication.

Share one platform with other European neurological associations to facilitate diary development, reduce costs, exchange experiences and foster collaboration.

Collect anonymised and searchable data for researchers with the aim of facilitating research projects, and the search for a cure, as well as for studies on the social and economic effects of neurological disorders.

IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING WITH NEUROLOGICAL DISORDERS

OUR VALUES

OUR TESTIMONIALS

WHAT people SAY

Due to the input in the MyDystonia App, my doctor adjusted the btx treatment, which worked out better for me. My symptoms of dystonia is now less noticeable and I have better quality of life.
Dystonia Patient
Norway
A very nice tool that was developed is MyDystonia App that allows the patient to track the change after the injection and to have a very precise diary to show to the neurologist. This helps a lot the neurologist in the evaluation at three months after the injection because it gives a window on patient benefit during the preceeding 3 months.
Neurologist
UK
I prefer to show my consultant a graph of my symptoms over the 3 months in between injections. I find it really easy to read and analyse and so does my consultant. The first time I showed it to him he was quite literally on the edge of his seat! He was really excited to see something so useful to dystonia patients and their Doctor/Consultant/Nurse etc.
User
MyDystonia

PARTNERS AND SUPPORTERS​