Advisory board
At the start of the project an Advisory Board of experts was formed. It consists of medical and scientific experts as well as dystonia patients and industry representatives. We are very grateful for their on-going honorary contribution and support.
Medical
Dr. Jean-Pierre Lin
Consultant Paediatric Neurologist in the General Neurology and Complex Motor Disorders Services Evelina Children's Hospital, London, Great Britain
Hortensia Gimeno
NIHR Clinical Research Fel,ow. Guys and St Thomas's Clinical Specialist Occupat1onal therapist, Evelina Children's Hospital London. Great Britain
Research
Prof. Christine Klein, MD, FEAN
Schilling Professor of Neurogenetics and Neurology University of Luebeck & Schleswig-Holstein. Germany
Industry
Dr. Stefan Wiemann
Head of Transplant Europe Sandoz, Holzkirchen, Germany
Patients
Adam Kalinowski
President Dystonia Europe & Board Member Polish Dystonia Association, Ireland
Edwige Ponseel
Vice President Dystonia Europe & President of AMADYS, France
Monika Benson
Executive Director Dystonia Europe, Sweden
EU Advocacy
Donna Walsh
Executive Director European Federation of Neurological Associations, Ireland
Information Technology
Eelco Uytterhoeven
IT advisor Dystonia Europe, The Netherlands