Advisory board

At the start of the project an Advisory Board of experts was formed. It consists of medical and scientific experts as well as dystonia patients and industry representatives. We are very grateful for their on-going honorary contribution and support.


Dr. Jean-Pierre Lin

Consultant Paediatric Neurologist in the General Neurology and Complex Motor Disorders Services Evelina Children's Hospital, London, Great Britain

Hortensia Gimeno

NIHR Clinical Research Fel,ow. Guys and St Thomas's Clinical Specialist Occupat1onal therapist, Evelina Children's Hospital London. Great Britain


Prof. Christine Klein, MD, FEAN

Schilling Professor of Neurogenetics and Neurology University of Luebeck & Schleswig-Holstein. Germany


Dr. Stefan Wiemann

Head of Transplant Europe Sandoz, Holzkirchen, Germany


Adam Kalinowski

President Dystonia Europe & Board Member Polish Dystonia Association, Ireland

Edwige Ponseel

Vice President Dystonia Europe & President of AMADYS, France

Monika Benson

Executive Director Dystonia Europe, Sweden

EU Advocacy

Donna Walsh

Executive Director European Federation of Neurological Associations, Ireland

Information Technology

Eelco Uytterhoeven

IT advisor Dystonia Europe, The Netherlands