Dystonia Europe is a non-profit organisation registered in Belgium and serving the needs of everybody with an interest in dystonia. We have 22 national member organisations from 18 countries and is representing the interests of more than 500,000 dystonia patients and their families across Europe.
The Dystonia Europe Vision is better quality of lives for people living with Dystonia in Europe, while supporting the search for a cure.
We will achieve our vision through the following core activities:
- Raise awareness and be the leading voice in Europe on the impact of Dystonia.
- Share the knowledge – provide the latest information and resources for our members and also be the source of information for the other stakeholders.
- Connect people with Dystonia, member organizations, healthcare professionals, European policymakers and the treatment industry to close the gaps of today’s dystonia treatments.
- Foster training and education and educate multidisciplinary teams and stakeholders along the dystonia journey to optimize care and improve quality of life.
Dystonia is a neurological movement disorder that causes continuous muscle contractions, leading to twisting and repetitive movements or abnormal postures. Dystonia can affect just one part of the body or be generalized throughout multiple muscle groups.